Arthritis support board2

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79 Responses to Arthritis support board2

  1. barbara johnson/bj says:

    well, here i am…. on methotrexate and in remission… new to any blogging, but your right… i was getting worried about taking “drugs”…. only been diagnosed for about a year, but after my one big flare,,, my angel of a doctor has found a great “combo”… i didn’t want to take all these little “pills”, but after reading here a bit, i’m happy to say… it’s working so far, and i’m celebrating that fact… :)Barbara

    Like

    • Dear Barbara,

      Those ‘little pills’ are really wonderful. Rheumatology as a branch owes a lot to methotrexate.

      All the best & hope you stay in remission.

      Like

      • Mathilda Engelbrecht says:

        Hi there,
        Mathilda here, from Sout Africa, have RA for a year. Heart effusion in the perricardium. now my shoulders and hands are just always sore. I feel guilty to be sore all the time. My work is threatened, use my hands a lot! Taking methotrexate. Make me feel bad for 2 days after taking (taking 10). Now my lungs are a problem. pain in lungs and shortness of breath. What about stem cell treatment. I would love to be without pain.

        Like

      • You may have a look at https://doctorakerkar.wordpress.com/2011/04/03/stem-cell-therapy-for-rheumatoid-arthritis/ to know more about stem cell therapy for rheumatoid arthritis.

        Stem cell therapy for RA is in a developing phase. We will have to wait for further studies with different medications/ designs for a definitive take on this approach.

        Like

  2. betus says:

    Good work, keep us posted, you are good writer!!!

    Like

  3. Sandhya Hiren Parab says:

    Arthritis cripples one’s body from within and extracts the energy from and damages the smooth coordination of our muscles.I have been suffering from this ailment for a few years now and before I got introduced to Dr.Akerkar I had almost transformed my body into a research center with different types of cures that were medically and also non-medically suggested.I had fearful doubts about consuming methotrexate when it was prescribed by doctor as I had read and heard about its actual use for a non curable disease and that of its severe sideeffects but after browsing through the articles written by Dr.Akerkar and understanding that arthritis patients are treated with small doses of this medicine because it is like golden cure I agreed to continue with the treatment.Now after almost a year I am back to being my usual cheerful self unlike the depressed,irritated person I used to be while I was in pain.I shall always be thankful to Dr.Akerkar for giving me a new lease of life.
    Regards-Sandhya Parab

    Like

  4. barbara johnson says:

    thank you Sandhya for your letter… our weather here in MA has been terrible so far for this spring…. and a poor start for summer… needless to say the “bones” hurt a bit.. off to see my RA Doc Friday and need to chat a bit…
    a few weeks back my right leg just started to swell , not so much pain but it felt like it was “bursting”….. i took prednisone for about 10 days… (tapering off as i stopped…) only one per day, but i felt it helped… now my right foot seems tight and swollen all the time…. i’m not sure what a “flare” is like, but expect to find out on Friday…. I guess i like dealing with it as it comes instead of worrying all the time… Some of this just might be my getting “older”..hehehe…
    I hope your feeling well and enjoy reading the thoughts of others in the same boat… thanks for writing…. Barbara

    Like

    • Sandhya Hiren Parab says:

      Dear Barbara,
      thank you for your mail.methotrexate has for sure turned out to be a blessing,we have taken a leap of faith with this medicine and will definitely touch the horizon of cure or atleast reduction of pain.wish you a healthy life.

      regards,
      Sandhya

      Like

  5. Dr.Vikrant says:

    Sir,
    I am working in muncipal hospital Mumbai.I am medical officer, we are treating ,refering many artritis pt . I am also a patient of R.A. I find this web site very helpful.

    Like

    • Thanks Dr. Vikrant,

      Your appreciation is the fuel for the next blog posts. Please help me raise awareness about RA.

      You may give this blog/ site (www.arthritissupportboard.com) URL to your patients for information.

      Like

  6. RAJESH says:

    sir,today i have learnt lot from this site, i am suffering from the desease ( RA) since 1996 with family history. There is well establish mith to refere Ortho Doctor in case of RA , i also consulted ortopedition in the start . Dr Ahuja(DMC Ludhiana) , Dr N D aggarwal , Patiala. In the start i take INMICINE , later on SAZO( 1998 to 2003) . In 2003 , i suffered from recurring execisve synvivol Fuid in my Left Knee, in the mean time , during examination at PGI Chandigarh , I came to know that due to side effects of Drugs ( Sazo & Nemislide) , i am also suffering NASH ( Non- alholic Steto Hepatises) , Liver biopesy done at PGI Chandigarh. Partical synovactmy of Knee ( Arthoscopy) got done by Dr Ashok Rajgopal ( Delhi) .

    now my right knee in lot of infmalation , due to excessive Synovataive Fluid, On recomadation of Forties, now i am on HCQS 200 mg . Please advise me , can i take HCQS , despite NASH, faty liver with High SGOT/PT ( ranging 60-80) , please advise any other alternate . There is acute shartage of Reumatolist in our area , we have to refer MS (Ortho).

    RAJESH GUPTA 9779584278

    Like

    • Dear Rajesh,

      Given the fact that you have NASH, there will always be restrictions on the DMARDs that you can take.

      You can take HCQS with NASH. You need to consult a Rheumatologist asap. Given the complexities in your case, it would be prudent to see a Rheumatologist instead of an orthopedic surgeon even if it means traveling for a few hours.

      Like

      • RAJESH GUPTA says:

        Sir, very very thanks for attending my problem. Now , My doctor advise me to start SAZO with HCQS despite NASH. He told me that only HCQS is not sufficient . Please help me , can i start SAZO ?. Now i am also diabtic and start MOTFORMIN 500 Mg ER. On the other hand , METFORMIN is also works for fetty liver decease, as such SGOT/PT now came down to 50-60 range.

        Like

      • You may take sazo.

        However, please consult a Rheumatologist. He’ll have to look at the other contraindications to sazo as well.

        Like

  7. barbara johnson says:

    Hi it’s me again,,Barbara…
    Just wondering… what “pain relief” is recommended… my hips, and legs ache a lot… very stiff… i have OA as well as RA… the RA i think is in remission… no real swelling,,although my right leg did “blow up for a couple of days…”i guess i’m just having trouble trying to figure out “which pain is which”… i’m just so stiff.. many people i know that have “arthritis” take pain killers… i am leary of too much medicine and want to take the right one… my RA doctor said to take all the tylenol i want… but with all the talk of too much of this and that hurting my stomach i’m worried… i did have surgery for a bowel interseception (sp)… so that’s a worry…… any info to help me would be appreciated… thanks Barbara

    Like

  8. rajesh gupta says:

    sir, thank you for quick responce

    Like

  9. poornimaambli says:

    HI! I had arthritis since 15 yrs. in 1996 when i was detected RA positive i had severe pain in multiple joints and my mobility was restricted. ( I was in late twenties). I ws put on NSAIDs. For one year i had chronic pain. later I conceived. My joint pain subsided. After child birth occasionally I used to get acute pain on rotation when the weather was humid or some infection in my body. I took only analgesics when pain aggravated. Now from last 3 months i have pain in my right wrist, swelling only. I have infection in my teeth which needed extraction. I am under dental treatment. MY ESR , SGPT, CBC, Uric acid is quite normal. ANA is moderate positive. RA factor is quite elevated 337.60 IU/mL (may be due to infection in teeth. …?). My ortho has advised me DMARD sulfasalazine. Do I require it ? I have great will power becos of which I am coping up with Arthritis. kindly advice.

    Like

    • Dear Poornima,

      You seem to be having a flare of rheumatoid arthritis. The best treatment for RA is DMARDs & not analgesics.
      Sulphasalazine is a good DMARD but may not be sufficient to take care of RA. Combination of DMARDs & not a single DMARD is the norm today.

      A Rheumatologist rather than an Ortho surgeon would be a better person to guide you.

      Like

      • poornima ambli says:

        Thank you so much for your quick response Dr. Akerkar ! I will consult a Rheumatologist. Any reference in Delhi. I’ve put up in Dwarka new Delhi.

        Thanks & Regards.

        Like

  10. RAJESH says:

    this is very common to consult orth surgeon instead of Rheumatologist. lot of lack of awareness in this regard. Main reasons is that Orth surgeon never educate RA patients to refer Reumatologist, they start treatment as a part of their marking/ profit motive

    Like

  11. Vanessa says:

    Arthritis cripples one’s body from within and extracts the energy from and damages the smooth coordination of our muscles.I have been suffering from this ailment for a few years now and before I got introduced to Dr.Akerkar I had almost transformed my body into a research center with different types of cures that were medically and also non-medically suggested.I had fearful doubts about consuming methotrexate when it was prescribed by doctor as I had read and heard about its actual use for a non curable disease and that of its severe sideeffects but after browsing through the articles written by Dr.Akerkar and understanding that arthritis patients are treated with small doses of this medicine because it is like golden cure I agreed to continue with the treatment.Now after almost a year I am back to being my usual cheerful self unlike the depressed,irritated person I used to be while I was in pain.I shall always be thankful to Dr.Akerkar for giving me a new lease of life.
    Regards-Sandhya Parab

    +1

    Like

  12. greek says:

    Does biofreeze help the RA’s pain??

    Like

  13. PeterMoon says:

    Good blog. keep up the good work.

    Like

  14. I have found an excellent book entitled “A will to win ” by Alice Peterson. I have this copy of this book translated in Marathi by Uday Kulkarni and Published by Mehata Publishing House.

    This is the real life story of a Tennis player having suffered from Rheumatoid Arthritis from the age of 18.

    She lives in London at Noting Hill.

    With the help of medication she can live without anybody’s help. She got her freedom with the help of medication.

    Writing has now become her full fledged profession and she has written many books, specifically on on the lives of disableled -shall I say differently abled people–

    She helps and guides the Rheumatoid Arthritis with the help of Rheumatoid Arthritis Society.

    A book must read by every RA patient.

    Wagholikar

    Like

  15. Homepage says:

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    Like

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    Like

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    Like

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  24. Manish Mishra says:

    I love to share to my conquer over Reactive arthritis. It started when I had food in my office canteen in March 2012. Next day I started having bad stomach which I ignored for atleast one week. I took domestic ways to fight with this. Next week I left for Hyderabad for a weeks training. In Hyderabad, I developed pain in my ankles and knees.
    BANG!!! After two weeks, I was not able to stand, forget about walk. My knees were swollen and had intense pain. I was forced to use wheel chair at airport and during my entire travel from Hyderabad to my home. I went to hospital directly and refused to be admitted as I did not take it seriously. Very next day, I started having unbearable pain and hence went to Bethany hospital where I got admitted.
    Till this point my family were shocked. People developed thoughts that may be this is because of some “Jadoo-Tona” (black magic). By the way, I was treated very well in Bethany hospital and doctor Piyush Sharma did a small procedure to reduce my knee pain. However, it was doctor S. M. Akerkar who identified it as Reactive arthritis.
    With the help of doctor’s guidance and treatment, today I am able to attend my office regularly. Though I still experience pain when I walk fast, but I am sure that in couple of months I will start running. Thanks to Dr. S. M. Akerkar, Dr. Piyush Sharma and entire Bethony Hospital staff.
    Reactive arthritis is curable. Think positive and trust your doctor.

    Like

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    Like

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  31. Bret Moisey says:

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    Like

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  40. Hello Sir!
    Writing to you after a long time. I have been reading your blog and articles on twitter regularly. Thanks a lot for all you informative and helpful guidelines, they are real boon for us.
    Recently i read that our digestive system or say our food habit affects the Autoimmune disease.
    Is it so? how does it affect in Lupus?
    If there is any connection please guide on the matter.
    Thanking you for you support now and always!

    Like

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  42. Dr. Romesh Joshi, MD, MBA says:

    Dr. Shashank has been a great medical colleague of mine…He has done fabulous work on RA..and so many of my patients have benefited from his work on RA..looking forward on collaborating with him on a big scale to make people more aware about RA and help them in decreasing their suffering of RA

    Dr. Romesh Joshi, MD, MBA

    Like

      • mathildasa@yahoo.co.uk says:

        Hi there! Being in south africa I feel very left out of new hope. I hve found that eating healthy and cutting milk out of my diet and doing exercise had made it possible to drink only 8 methotroxate rather than the prescribed 10. 10 pills just makes me dead inside. Nice to be human again. Is there any new research ith some hope? My friend jas aid and his docter said it’s better to have aids than RA because the research on aids cure is so extensive compared to RA. I was very depressed for a long time when he told me. I will however not loose hope!
        Sent via my BlackBerry from Vodacom – let your email find you!

        Like

  43. Manish Mishra says:

    Indeed. I am not exaggerating but the kind of experience he holds it seems medicines follow his instructions. He told me that after 6 months you will able to sit in squat position and it happened after 6 months. He assured me that after 9 months you will able to use staircases. Now I can. I was stressed when RA attacked me as I am shuttle player. Now I am sure after few months I will able to play. I was worried for so many medicine usages. Buy DR Akerkar advised two tablets… Awesome. Its impossible to imagine a treatment with two tablets and that too RA. Hats off Doctor. 🙂

    Like

  44. Manish Mishra says:

    Hi Mathilda,

    The doctor, I am referring to is Dr. Shashank Akerkar and based in India. I have been treated for RA at http://www.lokhospital.com. This blog is managed by Dr. Akerkar. You can follow him on twitter @doctorakerkar. I dont have his personal contact number. However at contacting hospital, you can get his contact details.

    Like

  45. Mathilda Engelbrecht says:

    Thank you so much, will definitely look him up!

    Like

  46. Dr. Romesh Joshi, MD, MBA says:

    Hi Mathilda,

    In case the above details don ot help..you can mail me on romeshj@yahoo.com…will get you in touch with Dr. Shashank AKerker…he is my close friend and colleague..

    Dr. ROmesh JOshi, MD, MBA

    Like

    • mathildasa@yahoo.co.uk says:

      I appreciate that. I have so many fears about RA, hear such bad things, like people dying from the strong medication, ulcers, loosing their toes etc. My depression about this is getting the better of me. Thanks again for your help.
      Sent via my BlackBerry from Vodacom – let your email find you!

      Like

  47. Dr. Romesh Joshi, MD, MBA says:

    Dear Mathilda..
    You can reach Dr. Akerkar at mumbaiarthritisclinic@gmail.com…he will surely look into your concerns about ur RA..Trust this helps..

    Dr. Romesh Joshi, MD, MBA

    Like

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  58. prashant says:

    Hello Dr
    Thank you for important information that u shared from ur blog.
    my wife (25/F) is facing joint pains last from few months n yde after her serum ANA positive, we hv been told about RA and referred to Rheumatologist…
    I’m in a stage of shock to understand criticality,and land up to blogs
    Thank u very much doctor.

    Like

  59. Anne says:

    I found that eating a raw food diet, not meat, really helps my RA pain, have had it for 7 years, but just found the raw food helps heal so much. no more swollen knees, but i still have pain in shoulders, it is getting better though.So the diet is mostly salads & greens and juices in a juicer, such as celery and cucumber carrot, they are rally anti inflammatory and healing too. Turmeric can be added to the juices as well.

    Like

  60. Anne says:

    Try raw food diet, it helps my pain levels so much. Diet change has made my chronically swollen knees not swollen anymore.

    Like

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